Making Patients Part of the Conversation: Integrating Patient-Generated Health Data into Care

Patient-generated health data (PGHD) helps providers understand the unique patient perspective.  Unfortunately, there is often a gap between collection of PGHD and integration into patient care.  Below is a sample of DHR projects that focus on understanding ways to effectively integrate and use this critical information to improve patient care and treatment.  To access our full portfolio of research on developing and assessing solutions for the collection and use of PGHD, visit AHRQ Funded Projects

Guide to Integrate Patient-Generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings

AHRQ developed a guide that has evidence-based, practical steps for implementation of PGHD in clinical care.  The guide can be used to support ambulatory care settings of all types in the design and implementation of successful PGHD programs.

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iMatter2: An AI-Driven Approach to Supercharge a Novel Digital Patient-Reported Outcomes Tool for Diabetes Management

Researchers studying a mobile health tool that uses text messages to capture patient data and provide data-driven and motivational text messages based on their responses, found that by receiving these messages, patients were motivated to be consistent with self-management behaviors, such as taking medications, making food choices, and engaging in physical activity.

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ACHIEVE: Successfully Achieving and Maintaining Euglycemia During Pregnancy for Type 2 Diabetes Through Technology and Coaching

Researchers are working to transform health care among Medicaid-enrolled patients with Type 2 Diabetes during pregnancy through a tailored and integrated technology solution that distills patient needs and preferences, and then uses them to develop applications specific to care.

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Visualization of Patient-Generated Health Data: A Scoping Review of Dashboard Designs

By conducting a scoping review of PGHD dashboards, researchers found that users want longitudinal data display and aggregation of multiple data types on the same screen and that speed, simplicity, and availability of data were key to dashboard adoption.

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Upcoming Webinar

Integrating Patient-Reported Outcomes into Practice: Benefits, Challenges, and Recommendations for Action

AHRQ will host a free Webinar on February 27, 2024, from 3:00 – 4:30 pm ET where an expert panel of speakers will share their research findings related to the use of patient-reported outcomes (PROs) for patients with different health conditions to better understand the factors that promote and hinder the use of PROs in clinical settings and their spread and scale within health systems.

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AHRQ Digital Healthcare Research Program’s mission is to produce and disseminate evidence about how the evolving digital healthcare ecosystem can best advance the quality, safety, and effectiveness of healthcare for patients and their families.
Website: https://digital.ahrq.gov/
Grant Funding Opportunities: https://digital.ahrq.gov/ahrq-digital-healthcare-research-funding-opportunities
Contact: DigitalHealthcareResearch@ahrq.hhs.gov